When OCD crosses the line, by a million miles

OCD is, simplified, obsessive thoughts and compulsive behaviours (rituals) that are done to get the obsessive thoughts to fade.

For me, the rituals were only time consuming, irritating and got somewhat in the way of functioning like an average person…

However, what happens when the rituals themselves generate so much distress from the fear of not doing them correctly that I avoid doing them? I shutdown and stop functioning 😢

Things just don’t get done, including eating and drinking (don’t get me wrong, I do, just not as often, healthily or regularly) as they require a clean surface or tap to do.

I end up spending potentially hours in bed when I’ve already woken up just avoiding getting up and facing down the rituals.

I end up putting off having a shower because the rituals involved make it take five HOURS!

My flat ends up a mess as the anxiety of carrying a contaminated item over to the dustbin exceeds my threshold for acceptable distress.

Walking through a door becomes an exercise in avoiding bumping into the doorframe.

Just opening a door becomes stressful as the handle isn’t clean, so am I going to face down opening it even with gloves? Now, in 30 minutes, or in 2 hours…?

Using gloves or wipes becomes a guilt trip for the sensation of wasting them to avoid touching or clean something that doesn’t need it.

Sitting at my desk becomes avoiding raising my kneecap so high that it hits the underside of the desk, which I haven’t cleaned, yet, from a day or more ago.

Going to sleep becomes “will I be too contaminated to function when I wake up?”. So how about staying up a bit longer, like until 4am…

Being on the bus becomes will I brush against anyone? So if the bus is crowded I’ll wait an unlimited amount of time for a less busy one.

Putting my coat on becomes did it get contaminated because I was careless taking it off?

Putting pyjamas on becomes will pulling my shirt over my head to change contaminate my face? So I sleep in my clothes.

Resting my head on my arms becomes contaminating my head with whatever might be on the floor as my elbows brush against stuff. So it doesn’t happen, no matter how relaxing…

I just shutdown, stop doing anything, and try to work up the courage and energy to get up and face down another task until there is no longer a day to face down and life becomes just pointlessly existing.

I feel so guilty expressing my distress that I get even more distressed and become unable to form words. My mind simply prohibits it, making not speaking the compulsion.

P.S. About the title, it’s a reference to how unreasonable OCD is. The line being minimal impact on life. The distance past is how impactful it becomes. I love playing on common sayings to say something awkward. Although as I find myself explaining them a lot, maybe they get a bit confusing 😛, hopefully this one isn’t…

P.P.S. I even feel guilty about writing about my OCD, knowing that someone might spend time reading it, and so I feel compelled to thank you for getting this far. Thank you 🐭

Fake, fake and another fake

When making sense of my OCD I create jargon to summarise the various facets. The term “fake” means that it feels like I was contaminated, my mind (if asked) says, “yep, you’re contaminated right now”, but I’m not.

Some fakes aren’t a problem can be brushed off in seconds as it is overwhelmingly clear that I wasn’t anywhere near, anywhere from 20cm to 2m, the object that I was supposed to have made contact with and had it contaminate me. The most common example is going near a surface that isn’t clean enough to use on the way to doing something else.

This evening however the fakes were about hitting items in the bathroom, where cleaning off the contamination would generate needing to have a shower immediately (which normally takes 4 hours, on a good day, without any special contamination) if not cleaned by other methods. I was aware that I probably didn’t hit anything, and every time I repeated an action that supposedly hit something I could see that I didn’t actually hit anything.

That didn’t prevent spending 40 minutes dousing clothing and my hands with disinfectant in a desperate attempt to remove enough contamination to avoid suffering through a 4 hour shower.

Eventually, well and truly fed up with the procedure, and safe in the knowledge that from any “normal” person’s perspective I’d have obliterated, multiple times, any biological or other material that could potentially cause harm I decided that “I hadn’t actually hit anything” and stopped there. Deciding that I had been hit would have required more cleaning, and a more intense version of what I had just done.

I use the phrase “a hit” to describe becoming contaminated which something as a result of impacting a contaminant or a contaminated item.

When I manage to avoid actually hitting anything, my mind seems so determined for a cleaning procedure to take place that it creates fake hits that I’m “required” to clean, unless I can show that they didn’t happen. Figuring out that I could avoid the cleaning by showing that it didn’t happened wasn’t what happened initially though, so lots of stuff got cleaned pointlessly (or even more pointlessly, as OCD isn’t solving a real problem).

I can temporarily distract myself and avoid cleaning a hit, but minutes, hours, days, or even weeks later the memory of the hit can impacts me at which point I’m compelled to clean everything I can to obliterate the memory of the hit – the logic being that by virtue of not cleaning the original hit the contamination has spread a lot.

The experience of having a hit overcome me long after its actually happened is what drives me to clean even when I feel that the hit maybe, probably, sort of didn’t happen, as getting past my anxiety to convince myself that not cleaning is OK feels impossible. So far I’m only able to bypass my mind when I can reason that the hit isn’t bad enough to require cleaning.

This brings me to more jargon I use. A “bypass” is when a hit that would normally require cleaning occurs, but I’m trapped in an important (for me) social situation, or deadline, basically something else is stressing me, a lot. This means that so long as I can vaguely reason that the hit “isn’t that bad” I will skip the cleaning is possible. The threshold for “badness” is low, so hitting the floor or shaking hands usually the worst I can bypass.

When trying to deal with everyday hits that no-one else is bothered by its sometimes possible to create a “skip” or a “cheat”, basically a rule that says that “in this situation, with this hit, it doesn’t count”. The rule is created after analysing previous stuff I’ve done, what other people do, so using logic to “skip” my OCD ritual. These usually require a trivial hit (knives and forks, say from a café) and won’t work when my anxiety level is too high and I lack the energy to enforce the “skip” as valid.

There is some overlap between a “skip” and a “bypass” as both provide practical advantages. However a bypass is created by sufficient stress overwhelming the distress created by my OCD, and a “skip” is created by using logic to work around my OCD, without actually beating it. As a “skip” doesn’t actually beat my OCD its also cheating in a way, as I’m not beating my OCD by overcoming it, just by side-stepping, hence the fact that I sometimes call it a “cheat.

P.S. Its been a while since my last post, a couple of instances of superficial cuts, but nothing since September, but my OCD has become worse and more overwhelming. My psychiatrist is referring me to a specialist OCD unit in London though, so that’s hopefully going to make a big difference.

It was worth it…

  • To call Samaritans about my worries (which took 45 minutes)
  • To have a shower (which took 3-4 hours)
  • To leave my flat (at 20:00…)
  • To visit my parents
  • To put up with the noisy crowed bus, where anyone could bump into me (OCD and contamination, not fun)
  • To go to the supermarket

Just so I can have moments of peace and quiet now that my day is done, and there’s no pressure to do anything

Just so I can listen to calm music.

Just so I can surf the internet without panicking every 30s that I haven’t done something.

Just so I can be happy, today wasn’t a disaster!

When life is hard, it’s the little things that really matter, doesn’t matter that you aren’t perfect, just that you’re here, and now.

Bye for now.

A good day, for me…

In the last 24 hours I’ve

  • Tidied up the rubbish in my bathroom and taken it out
  • Cleaned my shower (as I put stuff in there while tidying the rest of the bathroom)
  • Changed, not, cleaned the shower curtain
  • Had a shower
  • Gone out of my flat
  • Got food
  • Got back

Six months ago that would have been a bad day, so I’ve deteriorated quite a bit.

Tidying my bathroom is hard, not just because its a bathroom, but because every time something hits my skin, clothing, whatever, the only way to adequately clean it is with bleach, for skin that means putting bleach on, and quickly washing it off before my skin starts to sting too much.

Onto the next day, fingers crossed, it’ll be better – at least because the first 3 items won’t take up any time, as they’ve been done 😉

P.S. CMHT have decided to do a six week extended assessment to try and get me “better” before deciding whether to put me on the books.

A year since my first A&E visit

This day last year I was in A&E as a result of overdosing. That time I hadn’t taken enough tablets to be lethal, but I was still brought to the attention of the local psychiatry staff as a result.

I’ve gone a long way since then, with worse overdoses happening later in the year, and more than one admission to a psychiatric ward. I’m in a much better place than I was. Although my worries have evolved.

Since then I’ve gained weight, not that noticable visually, but definitely visible on the scales. That is what is irritating me today, and my mind briefly suggested another overdose to escape the problem.

My anxieties were heightened today, with a contamination becoming an almost unbearable load; I just left my flat and went to my parents to escape it. Later in the day (about 5 hours later) when I got back to my flat I was able to complete most of the decontamination to relieve the distress.

Today wasn’t fun, and had examples of almost every type of thought that could produce distress, except for nightmare scenarios in A&E or a ward. Fortunately I was able to dismiss them as insignificant. I am exhausted now however.

Contamination is my primary issue at the moment, with large amounts of cleaning materials being consumed. It would be great to obliterate it, but fighting it just makes it more traumatic, and causes my mood to crash. Calling myself “useless” or similar for it doesn’t help; it also provides an unwanted motive to self-harm.

As I’m writing this blog post it feels like I’m getting more and more disconnected from reality. Despite my fingers hitting the keys it doesn’t feel like I’m typing any more.

I suffer from tinnitus (persistent tone in my ears), and the noise has become really noticable right now; normally it’s background noise I filter out, but anxiety makes it get louder.

I’m safe, not about to hurt myself, and I’m going to finish the blog post with that.

Waking up

I have to do this every single day. It’s usually the worst part of the day though, with the behaviours generated by having OCD.

Step 1: Leave my bed

Leave my bed. This is the easiest part, so long as I don’t touch anything.

My OCD splits all the environments in my flat into different contamination states. In the past being in bed didn’t count as having any contamination, although in the last year it’s evolved into being avoid a state all of its own.

Step 2: Breakfast

At this point I have two choices.

  • I can wash my hands twice so that I can touch my cupboards (estimated time 30 minutes)
  • I can use disposable gloves as a barrier between me and the things I touch (estimated time 30 seconds)

Now onto making and eating breakfast. Put my granola with milk in a bowl and eat it.

Because of the contamination level from the contact between my mouth, which hasn’t been cleaned yet and (in)directly on other items, the bowl, spoon and surface now require cleaning before I can use them later in the day.

I usually don’t clean them until later.

Step 3: Netflix

I know have to change gloves to ensure I don’t contaminate my phone from the breakfast items. I’ll break my phone from cleaning it later, it has happened to more than one phone.

This step is just while I work up the motivation to have a shower. Depending on what I’m doing later and how anxious I am this state could last between 5 minutes and 5 hours.

Step 5: Shower

Including disinfecting the bathroom floor,washing my hands, cleaning myself and brushing my teeth this part usually lasts about 2 hours.

After this the bathroom floor and any sinks I’ve used are now contaminated from whatever I’ve washed off. Exactly what that is and why it’s a big deal doesn’t matter. It just is.

Step 6: Flat cleaning

This bit just eliminates any contamination created on any surfaces or sinks by the previous steps. It means that for the rest of the day I don’t need to worry about contamination as touching the items will no longer feel contaminating.

Done

I’m ready to start the day now.

If that seems tedious and and excessive, that’s because it is. With OCD I’m aware of the irrationality of what I’m doing, but I have no real means to control it.

This is my start of the day, every day. On the plus side, for today, I don’t want to hurt myself.